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The cost-of-living crisis is a matter of life and death for the seriously ill

The cost-of-living crisis and making seriously ill people pay for their medication is a deadly combination, says Laura Cockram of the Prescription Charges Coalition and Parkinson’s UK

1968 was the year the first decimal coins reached the high street, the post office launched a new first-class mail service, and Richard Nixon became America’s president.

Yet it was also the same year the prescription charge exemption list was introduced – and it has not been properly reviewed by the UK government since.

The list features conditions for which life-saving drugs were available at the time, and it has hardly changed in almost 55 years, so does not reflect the advances made in medical knowledge and technology.

Many serious long-term conditions such as asthma, inflammatory bowel disease, heart and kidney disease, cystic fibrosis, HIV, multiple sclerosis, motor neurone disease, stroke and Parkinson’s are still not included, despite the need for medication to stay well and, in many cases, alive.

Cancer drugs were only added in 2009.

Read more: Want to free up more money for the NHS? Then cut medicines wastage

This year, the urgent need for change has become even more pressing for people living with long-term health conditions. The soaring cost of living is not just forcing them and their families to cut back on the essentials, such as heating and food, but also vital medication.

Although the charge has been frozen for this year, between 2010 and 2018 charges have increased by 26%. Research conducted by the Precription Charges Coalition has shockingly shown it has led to patients skipping medication due to costs, which has in turn often led to unnecessary hospital admissions, costing the NHS significantly more.

Prescription charges can be a huge financial burden for people who need regular medication to manage one or more long-term conditions.

Disabled people are often most at risk from extra charges to stay well, with increased heating costs due to limited mobility, extra electricity to charge assistive technology devices and petrol to get to appointments due to limited transport options.

The disability charity Scope estimates that the extra costs experienced by a disabled person amount to £583 a month, according to its 2019 Disability Price Tag report. Research conducted by Sheffield Hallam University found a household with Parkinson’s in England is on average £17,094 worse off each year.

Charges have increased sharply since 1979. However, despite the freeze, vital medication is still unaffordable for many, with a single item costing £9.35, a three-month prepayment certificate costing £30.25 and a 12-month certificate costing £108.10.

The government says 90% of prescriptions are dispensed free of charge. But the burden falls unfairly on people with long-term conditions, who raise the majority of prescription charge revenue – £600 million in 2021. England is the only UK country where people must pay for their medicines.

Read more: Cost of living: Pleas to scrap script charge as patients forced to reduce meds

Pharmacists’ options to help patients who cannot afford to pay are limited. Many tell the Prescription Charges Coalition they’re under emotional strain, as they feel like they are depriving patients of their medication.

If their patients are struggling to afford medicines, pharmacists can try to identify an over-the-counter equivalent, which may be cheaper. And if the patient can’t afford their medication, they could advise them to apply for a HC2 certificate, which allows those on low incomes to receive free prescriptions.

Finally, they could advise them to purchase a prescription prepayment certificate, which spreads the costs of medicines.

The Prescription Charges Coalition recognises those on some benefits and the lowest incomes can get help from the government. But it’s not enough. We fear this year many more will make the tough decision not to take their vital medication and will become unwell, as they simply can’t afford it.

 

Case study: Zoe Oakley’s story



Zoe Oakley, a 42-year-old bus driver from Poole in Dorset has Polycystic Kidney Disease and had a transplant four years ago. She has started cutting tablets in half or is stopping specific medications to save money.

The single mother, who has two boys aged 14 and 10, says she's struggling with money. In 2017, Zoe was hospitalised twice as she had to wait until payday to collect her prescription.

She says: "I work but wages aren’t rising in line with the cost of living. I've heard others are doing the same. There is so much inequality and it's not right people with Parkinson's, transplant recipients and those with heart problems must pay for them while people with diabetes don't. The system needs a desperate overhaul."

She adds: “I pay a monthly price, but I have even got behind with that. Even though it's £10 a month, it's expensive and when I went to pay, I couldn't afford it. It's a struggle. It's pre-pay so if I run out at a difficult time, I must assess it. I've cut tablets in half to make them last longer. I've had to do that with blood pressure tablets. Doing this doesn't make me feel well.

"If I cut a blood pressure tablet in half, I get neck pain and headaches and my heart races. My transplant is in harm's way, but you're stuck. It's better to have some than none. It's like food, you're cutting back on everything.

"When I couldn't pay, I decided not to take one of the tablets, one that stops the side-effects of the other tablets I take, and it caused incredibly bad heartburn. It was like knives going into my chest. But if I don't take the other tablets, I lose a kidney and die."

 

Laura Cockram is chair of the Prescription Charges Coalition and head of policy and campaigning for Parkinson’s UK.

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